Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]

Carol F., 43
I had problems with my left ear for years. Everytime I would get a coldthat ear would get infected and over the years I could tell the hearing inthat ear wasn't as sharp as it had been.I didn't know why and just lived with it. Many years later I started havinga drainage ( waxy, and smelled weird )I went into my family doctor and hefound that I had a hole in my eardrumand sent me to an ENT specialist. Iguess by the time I got into see thespecialist the ear rupture had healedand he only treated my for an infectionand did cleanings to the ear for thedrainage ( which did help for awhile ).All was going well and I was releasedas healed. I went for end of the yearcheck-ups and was still doing well afterthe first year, however when I went inthe following year the specialist foundI had developed ( later I was told thatI had it all along ) a cholesteatomaand was sent to another doctor ( as mine didn't do those kind of surgeries)for an avaluation and he told me surgerywas needed and possibley a number of surgeries and ear problems forever.I wanted to educate myself as much aspossible about cholesteatomas and whatwas necessary to take care of the problem. I wanted another opinion andfound a wonderful ENT ( head and neckspecialist ). He took a look and didsome additonal cleaning of the ear inhopes he could get it without surgerybut it appeared to be to far back inthe attic of the ear. I had had a CTscan done and the mastoid was cloudybut it wasn't clear what was going onfor sure in the actual eardrum area, soI had sceduled my surgery the followingweek to get this all over with. My surgery was done and later I was toldby my doctor that he had performed anatticottomy and also repaired my stapiesbone ( with bone from above my ear ).The cholesteatoma had erroded that bonebut my hearing wasn't that effected yet,thankfully. My surgery was done froma cut behind my ear and left the earcanal ( alittle stretched ) but intactand that was great. After awaking frommy surgery I was just sleepy and thepain was actually not that bad. I nevereven took the pain meds. and took a fewtylenol but didn't need that. I hadno dizziness, just alittle drainage fromthe incision sites and some swelling ofthe ear and cheek. I could hear out ofthe ear but muffled because the ear drumhad been repaired and the hearing boneand it had been packed with desolveablepacking to hold the whole thing intoplace while it healed. That packinglater just desolved and I felt thatoccassionally going down my throat butjust felt like I need to clear my throatand wasn't bothersome. I went in formy last visit and passed with flying colors !! My ear had healed great andmy hearing was amost as good as new.My doctor said I didn't have to takespecial care of the ear and I would wash my hair and swim like normal.( I still don't let water get in thereon purpose but it does occassionallywhen I wash my hair ). I asked the doctor if I would have to have anythingelse done in the future and he told meeverything looks great and the surgerywent well ( my hearing tests went well )so go live your life and don't worry about it. I am so thankful for findingsuch a good group of doctors that knewwhat needed to be done and did just that. Now it's been a year after mysurgery and all is still going fine.My suggestion to anyone going throughthe cholestatoma problems and surgery isto find a good ENT specialist and askalot of questions.