Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]
[ Story 73 - Kira H, 16 ]
[ Story 74 - Deborah G, 54 ]
[ Story 75 - Ollie F, 54 ]
[ Story 76 - Erik N, 23 ]
[ Story 77 - Rus W, 43 ]
[ Story 78 - Arlene U, 30 ]
[ Story 79 - Michelle P ]
[ Story 80 - Judy K ]
[ Story 81 - Melaine B, 20 ]
[ Story 82 - Tim S, 26 ]
[ Story 83 - Steven M, 28 ]
[ Story 84 - Paul R, 24 ]
[ Story 85 - Jonathan V, 15 ]
[ Story 86 - Allison S, 21 ]
[ Story 87 - Mark S, 49 ]
[ Story 88 - Rita B, 59 ]
[ Story 89 - Chris K, 27 ]
[ Story 90 - Gary L, 58 ]
[ Story 91 - Brendon W, 15 ]
[ Story 92 - Rich J ]
[ Story 93 - Kalli B, 15 ]
[ Story 94 - Eliza B, 26 ]
[ Story 95 - J.C. Main, 23 ]
[ Story 96 - Kristine P ]
[ Story 97 - Catalin F, 30 ]
[ Story 98 - Nell Canton ]

Mike Coleman, 18

I was diagnosed with a cholesteatoma of the right ear at the age of 16. As a child, I always had ear infections. I had ear aches to the point of not being able to get out of bed. They eventually stopped going into my teen years. At the age of 16, my ear felt like it was clogging up but I ignored it. After that, they started leaking a yellow/brown discharge mixed with water and wax. I then became concerned. I visited a doctor who commanded me to go to an ear surgeon right away. Later, what I found out was the doctor saw the actual cyst of cholesteatoma ripping through my ear drum. It was poking a hole! My hearing was down quite a bit. We went to two ear surgeons and both said I needed an operation to have it taken out. I was scared. The day after I went to the doctor, he called my house at 5 in the morning and told my parents to bring me to the hospital. They were going to do the surgery that day. The surgery ended up lasting up to 9 hours!!! It took me a while to recover. I was told that the cholesteatoma was very large, and that it was close to my brain. The pain after the surgery was bad but nor horrible Not as bad as what was to come later. Pain killers didn't do anything for me. Probably because all they gave me was Tylenol. I wish I could end the story here, but I can't. That's because not even a year later, I returned to the same hospital for the same operation to remove Cholesteatoma that ended up coming back in one year's worth of time. They also extended the size of my ear canal.6-9 Months after my first surgery, my hearing went down significantly. I would have the huge television in my living room up to the highest it could go. I would have my stereos loud enough for other people to hear it on outside just because I couldn't hear it in the same room. Then the turning point. I went to go see Trans Siberian Orchestra LIVE AT MADISON SQAURE GARDEN AND IT WAS LOW!!! I HAD TROUBLE HEARING THE MUSIC!!! I knew something was wrong. My hearing ended up being down quite a bit in my right ear. Within that year, I caught Strep Throat twice. So it made my whole sinus area (excuse my language) a shithole. Before I knew it, I was scheduled for another surgery during my senior year of high school. This surgery lasted for over 10 hours. The pain after this one was even worse. My hearing did improve afterwards though and was practically at a normal level. It was such a great feeling. But I did have to be home schooled for a month. It was hard not being social with my peers for that time. I became depressed, lonely, and felt bad for myself during recovery. I also gained a lot of weight after the surgery since I had to stop working and couldn't participate in gym class/most physical activities for 2 years!!! Cholesteatoma can obviously destroy you physically but it takes its toll on your mind in a huge way. Also, being a musician, it was hard and still is hard to play live since it has also brought to me a form of "Tinitus" which is constant ringing/hissing in your ears or one of them. Another disease I will have to live with. Hopefully not forver. Cholesteatoma has been known to bring along Tinitus with its symptoms. Now I sit here almost 10 months after my 2nd surgery. My hearing is a little low, and every morning I still wake up and I have to wipe my ear. On the tissue there's either a discharge or blood. Sometimes both. My surgeon has left his practice. He is one of the nicest people I have ever met in my entire life. He cared about my health so much and he took good care of me. He is going down to Ghana in West Africa to become a doctor there. I look up to him for that.Now, just yesterday I had my first appointment with one of his surgeon counterparts who will now be my new surgeon. It turns out I will need a 3RD SURGERY. I felt like my heart fell to my feet when I heard this. IT has made my late teen years very hard to get through. But, it has made me a much stronger person. I don't know if this cholesteatoma will ever go away forever. Looking at reality, I think it's here to stay. The 3rd surgery is to remove tissue that has built up in my ear after the second surgery. Now, they must take skin from under my arm and patch up a part of my ear inside. They will also be looking for any cholesteatoma that may have possibly came back. 2 of my ear bones are broken and my surgeon has rebuilt me a new ear drum from other tissue. Artificial Ear Drum may not be the word for it, but it is a rebuilt one. If you're reading my story and you think you may have something related to a cholesteatoma, please do not delay. Find an ear surgeon on this website or one near you and get it handled! The sooner you take care of it, the better you will be in the end. Thanks for reading my story... Mike Coleman (Rutherford, NJ)