Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]
[ Story 73 - Kira H, 16 ]
[ Story 74 - Deborah G, 54 ]
[ Story 75 - Ollie F, 54 ]
[ Story 76 - Erik N, 23 ]
[ Story 77 - Rus W, 43 ]
[ Story 78 - Arlene U, 30 ]
[ Story 79 - Michelle P ]
[ Story 80 - Judy K ]
[ Story 81 - Melaine B, 20 ]
[ Story 82 - Tim S, 26 ]
[ Story 83 - Steven M, 28 ]
[ Story 84 - Paul R, 24 ]
[ Story 85 - Jonathan V, 15 ]
[ Story 86 - Allison S, 21 ]
[ Story 87 - Mark S, 49 ]
[ Story 88 - Rita B, 59 ]
[ Story 89 - Chris K, 27 ]
[ Story 90 - Gary L, 58 ]
[ Story 91 - Brendon W, 15 ]
[ Story 92 - Rich J ]
[ Story 93 - Kalli B, 15 ]
[ Story 94 - Eliza B, 26 ]
[ Story 95 - J.C. Main, 23 ]
[ Story 96 - Kristine P ]
[ Story 97 - Catalin F, 30 ]
[ Story 98 - Nell Canton ]

Leslie B, lbeherns@hotmail.com

Well I guess that this story is not really about me but my son. My son is now a strapping young terror of 2. Just kidding he is a great little two year old boy who is all BOY! This all started when he was born. In the hospital they always do the hearing test to see if there are any problems at birth. The doctors said that his hearing was fine, but mother's intuition proves differently. My son's ears just did not look right to me. At every check up appointment which was almost every day for a week, then about once a week after that I also noticed that the doctors said that they had a hard time looking at his ears. Being that I was concerned from the beginning I finally got a new doctor who sent us to an ENT. This ENT was not a pediatric but did diagnosis him with collapsed ear canals. Most people just call is severe stenosis of the ear canals. Anyways he sends us to Children's Hospital of Wisconsin and I think it is the best hospital ever. The doctors there want to do an exploratory surgery to see if he has any type of infection. When he gets in there he can't even fit a piece of equipment that is the size of a needle through his ear canal. At this point we are very nervous and ask millions of questions like what does this mean? He sends us for a CT Scan. Thank heavens for good doctors with great instincts. He finds in my 7 month old son a CHOLESTEATOMA!! Talk about scared out of my mind. Well we do take it one day at a time, but it is so hard. I looked on the internet but did not find what I wanted to know about it. Then surgery day comes and I ask the doctor who old his youngest patient had been. He tells us our son will be, and at over a year younger! Can you believe that our son at 8 months old is one of the youngest in the nation to have had this surgery. That made us even more scared. Well two and half hours later we have a happy little groggy boy back in our arms. I can't explain how happy we were to have such a great confident surgeon on our side. About 8 months later they did another scan and it seems that he has fluid in his ears again but they don't know if it for sure another c-toma. Hopefully not but we think it might be. He will hopefully have surgery to open up his ear canals around the age of 4 so maybe then it will actually work. After his other surgery and trying to open up his left ear canal it closed back up before we went back in for our 6 week check-up! Well I hope that this story might help some one else in the same or similar position. Please feel free to email me with any questions or comments. Good luck to anyone going through this ordeal!