Stories From People Who've Had an Experience With a Cholesteatoma
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Stories From People Who've Had an Experience With a Cholesteatoma
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[ Story 1 - Jeff Pittman, 18 ] |
Lisa A, 26
well he gos my story on cholestratoma i was 10 when my little sister was born in 1990 my mum was so happy she had given me a baby sister s i have too many brothers,10 days after birth my mums friend had noticed my mums face had dropped and her right eye would not close she obviously panicked thinking maybe it was a stroke at the young age of 33.she went straight to doctors very scared they told it was bells palsy and did not send her to hospital he said it was commen and would clear its self after about 5 months bearing in mind that she had complained continously about her ear and no one took any notice of her.5 months past and it was not back to normal my mum was so worried and the doctors did nothing but say my mum was an hypocondriact she knew something wasnt right so she went to casualty after a year had past as this was stil not corrected they also said it was bells palsy and told her to go home anyways my mum had made her own appointment for ent department and after a long wait due to no referal.the doctor could not believe what my mum had told him about her gp it had took 2 years from the palaysd side of her face to get the correct diagnosis by this time it was permanent and stay like this for the rest of her life and she had a cat scan and found out it was travelling to her brain it was going to kill her but thankfully thanks to the right doctor she was savedshe had sued the doctor and casualty it took 10 years 10 years to get any kind of result by this time the gp had died she was awarded 22,000 compensation which is nothing compared to what she had been through and being a women her face is the most inportant part of her body and she depressed for a very long time,now my story i was 15 when i started having the syptoms my mum had weeping ear earache dizzyness but this time the doctors could not ignore or mis diagnose me because of the problems my mum had suffered i was quickly in theatre,by the time i was 19 it had resufaced again while i was pregnant with my daughter and again had surgery shortly after her birth and told it would not come back agin because they was going to remove the bone in my left ear which would leave me deaf in that ear but later i found out that he hadnt taken it all out.and guess what i have the damn thing back again but this time its differnt it feels worse im just waiting for my urgent referal to come back as im terrified that what had happened to my mum will happen to me or worse. im having nightmares i just wish the doctor had taken the whole bone away id rather be deaf in one ear than keep suffering this nasty disease what i have seen the damage it caused my mum i hope this is of some help to you thanks for taking the time to read this....lisa
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