Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]
[ Story 73 - Kira H, 16 ]
[ Story 74 - Deborah G, 54 ]
[ Story 75 - Ollie F, 54 ]
[ Story 76 - Erik N, 23 ]
[ Story 77 - Rus W, 43 ]
[ Story 78 - Arlene U, 30 ]
[ Story 79 - Michelle P ]
[ Story 80 - Judy K ]
[ Story 81 - Melaine B, 20 ]
[ Story 82 - Tim S, 26 ]
[ Story 83 - Steven M, 28 ]
[ Story 84 - Paul R, 24 ]
[ Story 85 - Jonathan V, 15 ]
[ Story 86 - Allison S, 21 ]
[ Story 87 - Mark S, 49 ]
[ Story 88 - Rita B, 59 ]
[ Story 89 - Chris K, 27 ]
[ Story 90 - Gary L, 58 ]
[ Story 91 - Brendon W, 15 ]
[ Story 92 - Rich J ]
[ Story 93 - Kalli B, 15 ]
[ Story 94 - Eliza B, 26 ]
[ Story 95 - J.C. Main, 23 ]
[ Story 96 - Kristine P ]
[ Story 97 - Catalin F, 30 ]
[ Story 98 - Nell Canton ]

Sandy J.

I was first diagnosed with cholesteatoma when my regular doctor sent me to an ENT. This happened after two years of recurring "swimmer's ear". I was told that cholesteatoma was what I had and in both ears and it was supposedly caused by frequent ear infection trauma as a young child. The only symptom I ever had was this foul smell with or without drainage and only when I was a teen so if I had infections as a child there were no symptoms as my mother who is a nurse wouldn't have ignored any of these signs. My brother is the one that had ear infections and pain but had no further problems. When diagnosed with the cholesteatoma it was August of 1977 and I was rushed ahead into surgery that Labor Day weekend on my right ear. The ENT was very capable and had a good medical reputation but a lot was left to be desired on the information side before and after the surgery. I wasn't sure at the time exactly what had been removed and what the exact care should be after surgery except that it was imperative that I not get water in my ear and that the damage to my middle ear and mastoid had been more extensive than first thought. I was informed about the dangers if the cholesteatoma wasn't removed but I didn't receive info on all that cholesteatoma was. I was at this time also diagnosed with cholesteatoma in my left ear also but was told it was stable and I was to keep a close eye on it should I have any symptoms I should immediately see a doctor. I had no problems until the summer of 1989 when the foul smell returned in my left ear this time with no drainage. This has been my symptom I had never experienced any pain and not always drainage with my episodes. I returned to my family doctor who immediately set me up with an ENT. A different one as my last had died (heart attack). I hadn't kept up with treatment as it wasn't fully explained to me at the time coupled with the fact the ENT was in a different town and a lack of medical insurance at the time. I again was rushed into surgery as soon as possible even given the fact that I was just 4 months pregnant. I was told it was too much of a risk to wait since the cholesteatoma was active again. And again there wasn't much info offered due to the doctor having to cover his patients and my previous doctor's patients. With my right ear surgery I had hearing of 30% before surgery and gained 20% after surgery. With my left I was at 60% before and 75% after. The tones most visibly missing were those where conversation was involved. I had no problems with my ears except for the occasional day or two a year when I would experience vertigo and of course the hearing loss. It wasn't until 1993 that I started having reoccurring ear infections first in my right ear and then in both there was a span of 1 year where every month the infection would be back and I would be into the ENT. This being my current ENT - Dr. Montgomery who has explained more to me about my condition than the two prior doctors. But what he can't explain is why now I am plagued with infections other than my ears aren't remaining dry. I also discovered through this doctor that there had been some reconstructive work done at least on my left ear. During one of my bouts of infections a plastic piece was protruding through my ear drum. I still have little or no pain with these infections and sometimes no drainage but I have been having recurring bouts of vertigo. I had gone 21/2 years without an infection and I am now having another bout and the vertigo just seems to get worse and all of this when I have had regular treatment for my ears. This is my story to date.