Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]
[ Story 73 - Kira H, 16 ]
[ Story 74 - Deborah G, 54 ]
[ Story 75 - Ollie F, 54 ]
[ Story 76 - Erik N, 23 ]
[ Story 77 - Rus W, 43 ]
[ Story 78 - Arlene U, 30 ]
[ Story 79 - Michelle P ]
[ Story 80 - Judy K ]
[ Story 81 - Melaine B, 20 ]
[ Story 82 - Tim S, 26 ]
[ Story 83 - Steven M, 28 ]
[ Story 84 - Paul R, 24 ]
[ Story 85 - Jonathan V, 15 ]
[ Story 86 - Allison S, 21 ]
[ Story 87 - Mark S, 49 ]
[ Story 88 - Rita B, 59 ]
[ Story 89 - Chris K, 27 ]
[ Story 90 - Gary L, 58 ]
[ Story 91 - Brendon W, 15 ]
[ Story 92 - Rich J ]
[ Story 93 - Kalli B, 15 ]
[ Story 94 - Eliza B, 26 ]
[ Story 95 - J.C. Main, 23 ]
[ Story 96 - Kristine P ]
[ Story 97 - Catalin F, 30 ]
[ Story 98 - Nell Canton ]

Kim D.

Back in 1989 I had a severe ear infection in my left ear. I went to ENT and was told the infection ruptured my eardrum and destroyed everything in it's path "like a tornado". I had the surgery, which was done through the ear canal and lasted 5 1/2 hours. The PA, who was supposed to remove packing and stitches 10 days later, left some of the packing in. Needless to say, when I went back 2 months later, the doctor discovered the packing was never removed. I finished my follow up with that doctor, but never went back again. I never did get the hearing back. In 1994 it happened again. This time, I went to an ENT which was recommended by my regular doctor. He did same surgery but went behind the ear which cut surgery time to 2 1/2 hours and no hospital stay. After all was said and done with second surgery, I had about 10% hearing, not much. A few months ago, I started getting extremely dizzy and literally falling over, but didn't realize it was because of my ear until a few weeks after that when I couldn't even touch the outside of my ear without getting sick or falling. I called another ENT who came highly recommended and he took me in the next day. I was never told that I would need to have the ear cleaned several times a year by the last ENT and he discovered almost 9 years of, well, it's too disgusting to say, but after several visits, when the cleaning was done, my hearing loss was down to 60% (much better). But I was informed that I had hearing loss in my right ear, which was news to me, because I only had a tube put in that ear when I had second surgery back in 1994. He also did that pressure test on my right ear to find that I had no pressure at all. He looked at my right ear under the microscope to find that my eardrum had been sunken in. He immediately sent me for a CT scan that revealed I had a large cholesteatoma which was wrapped around my facial nerves and deteriorating them, as well as the brain nerves. I became quite scared because he wanted to do surgery right away, but I was able to convince him to wait until after Christmas. I asked what my chances were that my face would become paralyzed and he said he wouldn't know until he got in there. I had my surgery on January 10, 2003 which lasted 4 1/2 hours. I was in quite a lot of pain, which I never really had with the other surgeries. More so in my jaw. It was hard to get my mouth over a fork or spoon. I am now 2 weeks post and it is still a little hard to open my jaw and food still tastes bad. I have a constant metallic taste in my mouth. But, I have no paralysis so that's a good thing, but also can't hear. It will be some time before I know if I have hearing back. I thank God that I found such a thorough doctor, because I went to him for my left ear, not the right one. I think I have now found the perfect ENT and will have a lifetime with him, as he will have to clean the ears several times a year.