Stories From People Who've Had an Experience With a Cholesteatoma   
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Stories

[ Story 1 - Jeff Pittman, 18 ]
[ Story 2 - Ronald ]
[ Story 3 - Lisa G. ]
[ Story 4 - Kathy M. ]
[ Story 5 - Jacob, 7 ]
[ Story 6 - Miranda ]
[ Story 7 - Mason ]
[ Story 8 - Kim D. ]
[ Story 9 - Tiffany ]
[ Story 10 - Samantha B. ]
[ Story 11 - Elizabeth ]
[ Story 12 - Erin H. ]
[ Story 13 - Sandy J. ]
[ Story 14 - Danielle ]
[ Story 15 - Micheal ]
[ Story 16 - Janice ]
[ Story 17 - Kari ]
[ Story 18 - Audrey ]
[ Story 19 - Vinny ]
[ Story 20 - Angie & Cody ]
[ Story 21 - Dave, 39 ]
[ Story 22 - David, 53 ]
[ Story 23 - Jason W, 18 ]
[ Story 24 - Kayla S, 23 ]
[ Story 25 - Melissa C., 35 ]
[ Story 26 - Matt K, 21 ]
[ Story 27 - Patricia N ]
[ Story 28 - Alan B, 19 ]
[ Story 29 - Jonathan, 20 ]
[ Story 30 - Joel M, 38 ]
[ Story 31 - Jacki C, 21 ]
[ Story 32 - Elizabeth Oliver, 61 ]
[ Story 33 - Ryan T, 24 ]
[ Story 34 - Carolyn S, 55 ]
[ Story 35 - Lisa A, 26 ]
[ Story 36 - Steve M, 33 ]
[ Story 37 - Melissa M, 40 ]
[ Story 38 - Adam V, 20 ]
[ Story 39 - Michele C, 28 ]
[ Story 40 - Kevin Davidson, 55 ]
[ Story 41 - Kelsea F., 14 ]
[ Story 42 - Michele M, 62 ]
[ Story 43 - Cherie H, 30 ]
[ Story 44 - Cheryl York ]
[ Story 45 - Leslie B ]
[ Story 46 - Elisha D, 16 ]
[ Story 47 - Ashley M, 22 ]
[ Story 48 - Ryan L, 17 ]
[ Story 49 - Robert H, 50 ]
[ Story 50 - Jame M, 28 ]
[ Story 51 - Sally B ]
[ Story 52 - Mike Coleman, 18 ]
[ Story 53 - Luz R, 44 ]
[ Story 54 - Mela C, 46 ]
[ Story 55 - Tyler S, 19 ]
[ Story 56 - Matt Marsteller, 46 ]
[ Story 57 - Emma-Louise M, 13 ]
[ Story 58 - Steffanie E., 49 ]
[ Story 59 - Umi H, 20 ]
[ Story 60 - Pam M, 44 ]
[ Story 61 - Lorna P, 41 ]
[ Story 62 - Kerri M, 31 ]
[ Story 63 - Bev I, 35 ]
[ Story 64 - Angela H, 17 ]
[ Story 65 - Curtis H, 32 ]
[ Story 66 - Georiga K-H, 17 ]
[ Story 67 - Kara, 21 ]
[ Story 68 - Hanes B, 8 ]
[ Story 69 - Nikki C, 15 ]
[ Story 70 - Amanda O, 21 ]
[ Story 71 - Leah S, 23 ]
[ Story 72 - Carol F, 43 ]
[ Story 73 - Kira H, 16 ]
[ Story 74 - Deborah G, 54 ]
[ Story 75 - Ollie F, 54 ]
[ Story 76 - Erik N, 23 ]
[ Story 77 - Rus W, 43 ]
[ Story 78 - Arlene U, 30 ]
[ Story 79 - Michelle P ]
[ Story 80 - Judy K ]
[ Story 81 - Melaine B, 20 ]
[ Story 82 - Tim S, 26 ]
[ Story 83 - Steven M, 28 ]
[ Story 84 - Paul R, 24 ]
[ Story 85 - Jonathan V, 15 ]
[ Story 86 - Allison S, 21 ]
[ Story 87 - Mark S, 49 ]
[ Story 88 - Rita B, 59 ]
[ Story 89 - Chris K, 27 ]
[ Story 90 - Gary L, 58 ]
[ Story 91 - Brendon W, 15 ]
[ Story 92 - Rich J ]
[ Story 93 - Kalli B, 15 ]
[ Story 94 - Eliza B, 26 ]
[ Story 95 - J.C. Main, 23 ]
[ Story 96 - Kristine P ]
[ Story 97 - Catalin F, 30 ]
[ Story 98 - Nell Canton ]

Ronald

I didn't know what cholesteatoma was until recently. I still am not fully aware of the total facts, just started doing a search on the web about it. In fact, that is how I found this site. but here's my story. Being in the US Air Force for the past 5 or so years I have gone through annual check ups with our medical techs every year. This is a mandatory routine done once a year. And it seems that just like clock work I also end up either with a sinus cold or "head cold" at the same time I am scheduled for these annual appointments. This has gone on since 1998 since I arrived in Europe, hence one of the reasons why I have these "head colds" - the weather is usually around 45-50 degrees F. Part of these annual check ups require a hearing test and I seem to always fail my set base-line every year. Medication gets prescribed for an ear infection and then it clears up and I pass the follow-up hearing test. On one or two occasions during the follow-up appointment the Doctor(s), because I rarely saw the same doc twice, have said that my right eardrum looked abnormal but my hearing is okay according to my "base-line" then sent me on my way. Well, this last check up in March 2002, same thing happened, head-cold during appointment prescribed the meds and infection went away. But this Doc was a little more concerned about the abnormal appearance of my right eardrum and advised me to make an appointment with an ENT specialist. So I did and when I finally did see him he too was concerned about the appearance of the eardrum. He said it was collapsed or "Sucked in" proving to be a bad eustachian(?) tube and that he noticed a white ball like substance behind the eardrum which he theorized as a possible cholesteatoma growth but wanted a CT scan to further diagnose. I got the CT scan done and guess what, I finally got an accurate diagnoses of having Cholesteatoma, along with a collapsed eardrum. I didn't know what it was at the time but the doc did give a general description. He scheduled a surgery date for two and a half weeks (21 May 2002) after the CT scan. He went through the whole pre-operation procedures with me and said that it [the surgery] should take 3 hours minimum, no more than 5 hours, and that I could leave that same day due to the fact that the CT scan only revealed it to be only around my three hearing bones. On the day of surgery I remember getting administered the anesthesia at 0900 hours then waking up to a medical technician who was taking my vital signs at 1830hrs that same night. The first thing that I had asked him was, "Where am I?" and he said that I have been admitted to stay overnight due to the fact that the surgery lasted longer than originally planned. This was ordered by the ENT specialist (who performed the surgery) and the anesthesiologist. The next day my ENT specialist came to check up on me and explained what happened. He told me that the cholesteatoma growth was worse than what was revealed by the CT scan.

That there was actually three different growths, one around the three hearing bones, one that had migrated to the mastoid bone or cavity and one that had started growing in a pocket near the beginning of my eustachian tube. He honestly said that he did not expect the growth to be where it had been and that I was on the borderline of having permanent damage. He was a bit disappointed that the CT scan did not reveal the entirety of what he had discovered. I feel he is a good doc and that he did what he could to remove all that he was able to. I thank him a thousand times over...!! Now we are in the next stage of the process and that is waiting to heal and see if it will grow back or not. If all goes well, then I go for another surgery to reconstruct and restore my hearing which will be about 4-6 months down the road. For all those in the same boat as I am, it's unfortunate, but there is hope... For those whose situations are worse than mine, you have my sympathy, and I feel for you... Good Luck!!